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Rare Disease Day
Results: 254

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91	Access to Drugs for Rare Diseases in Canada What is a rare disease? A rare disease is defined in many jurisdictions as a disorder that affects less than one in 2,000 persons. There are over 7,000 known rare diseases, man Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2014-09-24 10:24:49 Pharmaceutical sciences Epidemiology Rare disease Orphan drug Chronic Canadian Organization for Rare Disorders Rare Disease Day Health Medicine Health economics
92	Access to Drugs for Rare Diseases in Canada What is a rare disease? A rare disease is defined in many jurisdictions as a disorder that affects less than one in 2,000 persons. There are over 7,000 known rare diseases, man Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2014-09-24 10:25:57 Pharmaceutical sciences Epidemiology Rare disease Orphan drug Chronic Canadian Organization for Rare Disorders Rare Disease Day Health Medicine Health economics
93	Rare Disease UK Annual General Meeting: Minutes Tuesday 5th February 2013 – 10.30am – 1.30pm GSK House 980 Great West Road, Brentford, Middlesex TW8 9GS. 1. Welcome Alastair Kent OBE, Chair of Rare Disease UK, welcom Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2014-02-12 09:19:03 Rare diseases National Institutes of Health Genetic Alliance UK Rare Disease Day Disease Health Medicine Epidemiology
94	Improving Lives, Optimising Resources: A Vision for the UK Rare Disease Strategy Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2012-04-18 12:36:50 Genetic Alliance UK National Health Service Rare Disease Day Patient safety organization Health Rare diseases Epidemiology
95	2015 Information Pack EURORDIS November 2014 Rare Disease Day 2015 – Official Partners – Participating National Alliances Add to Reading List Source URL: download.rarediseaseday.org.s3.amazonaws.com Language: English - Date: 2014-11-25 05:44:59 Medicine Rare Disease Day Rare disease European Organization for Rare Diseases Science Disease Chronic Greek Alliance of Rare Diseases Epidemiology Health Medical terms
96	FINAL REPORT EUROPLAN 15 National Conferences PT additions Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-08-02 07:28:05 European Organization for Rare Diseases Genetic Alliance UK Orphan drug World Health Organization Rare Disease Day Health Public health Rare diseases
97	COLLABORATION EDUCATION LEADERSHIP RESEARCH ADVOCACY Add to Reading List Source URL: www.gaucherdisease.org Language: English - Date: 2014-11-07 15:16:26 Pharmacology Epidemiology Drug discovery Nursing research National Institutes of Health Rare Disease Day Rare disease Orphan drug European Organization for Rare Diseases Health Medicine Pharmaceutical sciences
98	Speech by Alex White T.D., Minister of State at the Joint North South Event at Queen’s University, Belfast on International Rare Disease Day 28th February[removed]I am pleased to be here this morning along with Minister Add to Reading List Source URL: www.ipposi.ie Language: English - Date: 2014-09-26 08:55:18 International Conference on Population and Development Reproductive health Bhutan Commission on Population and Development Population United Nations Human geography
99	‘Improving Lives, Optimising Resources: A Vision for the UK Rare Disease Strategy’ – Summary of the report Coordination of Research Current situation Research into rare diseases is currently hindered by limited fun Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-06-03 06:47:05 Genetic Alliance UK Healthcare Health care Rare Disease Day Health 2.0 Health Medicine Rare diseases
100	Improving Lives, Optimising Resources: A Vision for the UK Rare Disease Strategy Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-02-09 07:54:13 Genetic Alliance UK National Health Service Rare Disease Day Patient safety organization Health Rare diseases Epidemiology